Friday 26 September 2008

Edwina Hart Minister for Health committed to organ donation and increase in numbers on register


Welsh Assembly Government Minister Edwina Hart was praised by patients and Assembly Members for her support of the Donate Wales Tell A Loved One Campaign. Speaking in the Assembly Mrs Hart expressed her gratitude to the Kidney wales Foundation for leading the Campaign and said " It is important that we address the need for the 500 waiting for organ transplants in Wales and I want to continue to work towards increasing the numbers on the organ donor register in Wales" .

She added " I have anounced a consultation withe public on a system of presumed consent."

Roy J Thomas chair of Kidney Wales Foundation said "Politicans from all parties have praised the Minister for direction she is taking us. We will continue to campaign and ensure that patients like Robert Edwards get a transplant."

Present was Robert Edwards aged 13 years who has just had a transplant and is the face of the Donate Wales Campaign.

Tuesday 23 September 2008

Western Mail Leader 20 of September 2008 on Question of Presumed Consent and Organ Donation

FROM EDITORIAL OF WESTERN MAIL SATURDAY 20th of SEPTEMBER 2008

THE question of whether we should opt out of donating our organs should we die remains a divisive one, as the political developments we report today demonstrate. The Assembly’s health committee rejected the idea, preferring to stick with the current system where people have to opt in and sign up for a donor card.

The committee decided switching the rules around would be a “distraction” from efforts to encourage more people to sign up.
Its report also suggested that public opinion was not ready to make the switch – something that seems unlikely.

Yet not every AM on the committee was convinced by this line of argument, and it seems Health Minister Edwina Hart is open to the idea of a change in policy. She said yesterday she would not rule out asking for the powers to be transferred from London to Cardiff Bay so Wales could make its own decisions on the issue.

Her response to the health committee sensibly pointed out the report did not reflect the range of different views on the question. In short, the health committee ducked the issue; it would be better to be bold, and take a position that says Wales should lead the way.

The devolution settlement allows Ministers to ask Westminster for extra powers; it should do so in this case, and a decision on whether Wales should be the first part of the UK to have a system of presumed consent in organ donations should be made by the Assembly. That decision should come in a free vote of all 60 AMs, and not be decided by a Minister or a health committee that is itself split on the issue.

We think presumed consent is a simple and sensible move forward. It’s clear that the present system does not work well enough; not enough people carry donor cards, and the waiting lists for transplants goes up and up.

Changing the policy costs nothing, save for a necessary public information campaign, and has the potential to make a huge difference to thousands of families.
Far too many people are suffering the distress of seeing loved ones fighting for life while a desperate search for donors goes on – surely we can rewrite the rules and reduce their pain? There are now 501 people waiting for a transplant, the highest ever number. With the figures heading in the wrong direction, the time is right for radical action.

Some will object that the state has no place in automatically claiming rights over a person’s body. But this would be presumed consent, not compulsory donation. Those who feel strongly can easily opt out, and some doubtless will.
But that isn’t an argument for doing nothing. The present system doesn’t work well enough, and causes unnecessary suffering. The Assembly Government should seek the power to do something about it – and show it’s brave enough to lead the way.

Monday 22 September 2008

Kidney transplant father backs reform - WalesOnline

Kidney transplant father backs reform - WalesOnline

Mr Schofield travelled to the Philippines in June 2007 in the hope of buying a new kidney after an earlier transplant had failed.

The trip was unsuccessful but he underwent a kidney transplant at the University Hospital of Wales in February, allowing him to return to work and resume surfing.

The father-of-two said: “Presumed consent is a great thing, but the way it has been put across means many people think they will be giving everything away.

“No-one will be asking anyone to do anything different if we move to an opt-out system – people will still be able to live their lives as fast as they want, but if anything happens they will have another chance to help someone else."

A vision for organ donation (From Western Telegraph)

A vision for organ donation (From Western Telegraph)

Pembrokeshire people and businesses have been busy supporting the Kidney Wales Foundation.

In the recent Kidney Wales Foundation charity half-marathon held in Cardiff, Charles Davies, from Haverfordwest was one of the oldest runners and completed his race in less than an hour.

The Donate Wales, tell a loved one campaign is being led by the Kidney Wales Foundation. It has resulted in some of the country’s biggest charities coming together to tackle the shortage of donors.

Manager of Haverfordwest Specsavers, Andy Britton, said: “We are delighted to be supporting this campaign. We have already been encouraging customers to join the organ donor register and tell their loved ones just how important organ donation is through leaflets and posters."

Sunday 21 September 2008

TEENAGER Robert Edwards is living proof of the amazing gift of organ donation. - WalesOnline

TEENAGER Robert Edwards is living proof of the amazing gift of organ donation. - WalesOnline



TEENAGER Robert Edwards is living proof of the amazing gift of organ donation.
Sep 20 2008 by Katie Bodinger, South Wales Echo

The 13-year-old, who was on dialysis 10 hours a night before the operation two weeks ago, is now full of energy.

After a wait of more than two years, his parents, Paul and Jayne, are understandably overjoyed that their son can look forward to being a normal youngster.

Before, their lives were on hold as they anxiously waited for the life-saving call to come.

There is a desperate need for more organ donors, as Robert’s plight shows.

Let’s hope his case will inspire more to tell relatives that if the worst happens they would want their organs to save the lives of others.

Lib Dem’s welcome for donor report - WalesOnline

Lib Dem’s welcome for donor report - WalesOnlineLib Dem’s welcome for donor report
Sep 20 2008 by Katie Norman, South Wales Echo

LIBERAL Democrat health spokeswoman Jenny Randerson has given the “strongest possible welcome” to Health Minister Edwina Hart’s rejection of the Health Committee’s report on presumed consent for organ donation.

Saturday 20 September 2008

Wales could lead UK in presumed consent for organ donations - WalesOnline

Wales could lead UK in presumed consent for organ donations - WalesOnline


WALES could yet become the first country in the UK to change organ donation laws and introduce a controversial opt-out system.

Health Minister Edwina Hart yesterday said she would not rule out a legislative competence order for presumed consent, as she rejected recommendations by the National Assembly’s influential health committee.

Mrs Edwina Hart was yesterday praised by campaigners and political opponents for showing “leadership” over the issue despite the lack of concrete plans to move presumed consent forward.

Roy J Thomas, chair of Kidney Wales Foundation, said: “It is about time that we saw leadership on this issue in Wales.

“For a conclusion to a report to say to a family, hold on your child can wait for a transplant or die waiting, is a failure to read the real situation and more importantly the evidence before a committee.

“While the committee says now is not the time to introduce presumed consent, our supporters say, when will be the right time – should more people die while the health committee deliberates?

“We now need action on this issue.”

Friday 19 September 2008

Wales organ donation consent plan - WalesOnline

Wales organ donation consent plan - WalesOnline

Wales organ donation consent plan
Sep 19 2008 By Madeleine Brindley

WALES could become the first part of the UK to switch to a system of presumed consent for organ donation as Health Minister Edwina Hart today dramatically rejected an Assembly committee report.

The National Assembly's health committee decided that it would not call for such an opt-out system earlier this year because it would "distract" from the need to increase the number of organs available for donation.

But Mrs Hart today said that the receommendation is out of step with public opinion and said the Assembly Government will not rule out seeking a legislative competence order to introduce presumed consent in Wales.

BBC NEWS | Wales | Presumed consent on organs backed

BBC NEWS | Wales | Presumed consent on organs backed

A system of "presumed consent" for organ donations may be sought by the Welsh Assembly Government.

Health Minister Edwina Hart has announced that it remains under "active consideration".

She was responding to the assembly health committee's recommendation that ministers should not seek powers to bring in such a system.

Wednesday 17 September 2008

Healthy vision - WalesOnline

Healthy vision - WalesOnline

Healthy vision
Sep 18 2008 by Our Correspondent, Gwent Gazette

A LOCAL optician has pledged its support to a campaign urging people to join the Organ Donor Register and talk about organ donation with their loved ones.

Specsavers in Ebbw Vale is backing the Donate Wales, Tell a Loved One campaign. It is funded by the Welsh Assembly Government and has already received the support of Welsh celebrities such as Colin Jackson, Connie Fisher, Max Boyce and Stuart Cable.

More than 490 people in Wales are currently waiting for transplants, yet only one in four of us has joined the Organ Donor Register. The campaign is being led by the Kidney Wales Foundation and sees some of the country’s biggest charities come together for the first time in the UK to tackle the shortage of donors. Organisations involved include the British Heart Foundation Cymru, British Medical Association, Diabetes UK, British Liver Trust, Cystic Fibrosis Trust, Live Life then Give Life, Royal National Institute for the Blind and Welsh Kidney Patients Association.

Saturday 6 September 2008

Katherine sings ‘kindhearted’ runners’ praises - WalesOnline

Katherine sings ‘kindhearted’ runners’ praises - WalesOnline

Katherine sings ‘kindhearted’ runners’ praises
Sep 5 2008 by Madeleine Brindley, South Wales Echo

CLASSICAL superstar Katherine Jenkins will be cheering on thousands of runners on Sunday when she starts this year’s HSBC Cardiff 10K Run.

This will be the mezzo soprano’s first official engagement for the Kidney Wales Foundation after becoming the charity’s newest patron.

Katherine said: “I’m really looking forward to starting the run and can’t wait to see lots of kindhearted people coming together in the name of the charity.

“It’s going to be a wonderful day that, thanks to the generosity of people across Wales, will help raise life-saving funds for Kidney Wales.”

About 2,000 runners are expected to don their trainers on Sunday for the charity, which supports people with kidney problems, including Zowiann Flood, from Pontypridd.

Tuesday 2 September 2008

'Now I can see again I look at it as a gift' - WalesOnline

'Now I can see again I look at it as a gift' - WalesOnline

'Now I can see again I look at it as a gift'
Sep 1 2008 by Madeleine Brindley, Western Mail

Organ transplantation is life-saving surgery for the patients fortunate enough to find a donor. But it can also be sight-saving, as Health Editor Madeleine Brindley found when she met the grandmother whose life has been transformed by a corneal graft

DEBBIE HARRIS lived in a black and white world of shadows and mist, only able to recognise her own daughters by their silhouettes and the smell of their perfume.

She had no idea what the youngest of her eight grandchildren looked like – she was unable to conjure a picture of them in her mind’s eye as they spoke on the phone as they had been born after she started her descent into blindness.