Robert Edwards has been on the waiting list for a new kidney for two years.The 13-year-old undergoes 10 hours of dialysis every night to help him stay alive.
On the outside Robert appears to lead a normal life – he enjoys camping, playing tennis and bowls and is a keen Scout – but his parents Jayne and Paul know their son’s life will never be normal until his receives a kidney transplant.
It is thought Robert’s kidneys became irreversibly damaged by a virus when he was three.
Mrs Edwards, who lives in Dinas Powys, said: “It’s been hard for him having to adjust his life around the dialysis, but we’ve been so proud in the way he has done this. You try to keep yourself occupied and make things as normal as possible for Robert, but sometimes you reach a point where it just snaps.”
She added: “Every time you see a strange number on the phone you think: ‘Is this it, is this the call saying a kidney is available?’ It’s difficult knowing something tragic has to happen for your child to be given a second chance, but the hope for us is knowing that so many people have already joined the organ donor register wanting to help people like Robert.”
Roy J. Thomas Chair of the Campaign said "Robert is a top guy and I feel privileged to have been working with him on the Campaign. I called him up to the stage in front of over 320 people on Thursday night and I am sure he would have delivered a better speech than me. Being on dialysis annoys him as he misses school.We are supporting him and all like Robert in Wales".
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