Thursday 26 June 2008

Long Wait for a Transplant ask the daughters of Stewart Rankin who waits


(Stewart Rankin and daughter Molly pictured)

AFTER two years on the heart transplant waiting list, Stewart Rankin is acutely aware of time running out.

But the 58-year-old, from Rogerstone, clings to the hope that he will get the telephone call that could signal a life-transforming operation.

The former social worker joined the waiting list, early in June 2006.

For Mr Rankin's daughters Molly 16, and Willow, 17, and wife Connie, a new heart would make an ideal gift, but for now they back the latest campaign to boost Organ Donor Register numbers.

The Donate Wales - Tell A Loved One campaign, launched recently by the Kidney Wales Foundation, is backed by other charities, including the British Heart Foundation, British Liver Trust, Diabetes UK Cymru, RNIB Cymru, and the Welsh Kidney Patient Association.

For Mr Rankin, it is vital more people join the register and tell their families of their wishes.

"There's a debate about presumed consent for organ donation, and one of the problems I think, iis that people think it is going through Parliament. But it isn't and it would take several years anyway," he said.

"Joining the register is something people put off, even though they do not necessarily disagree with the idea. We don't like to confront the idea of death."

That idea is something the Rankin family have had to get used to since Mr Rankin, who fell ill in 2000, was diagnosed with congenital heart failure two years ago.

Failing health means Mr Rankin, who retrained as hypnotherapist, cannot participate fully in family life, with even trips to the cinema ruled out.

"I don't want to be dependent. I've always worked, but I am asking for help now. I still have a life ahead of me," he said.

"It is phenomenally expensive for to the country to support people on the waiting list, around £200 million. But to treat us would cost around £40m. The rest could be saved every year.

"Most people on the lists want to go back to work, but liike me they have stay-at-home lifestyles.

"I have a fantastic family and the greatest gift I could have would be a new heart. Then I can start joining in."

For Molly Rankin, who has just completed her GCSEs, the Donate Wales campaign is vital "It could save someone's life, like my dad's," she said.

"Without a donor, dad will die one day. He won't get to see us grow-up and get married, or look forward to retirement with mum. It's a horrible future for all of us."

There are around 7,500 UK-wide awaiting an organ transplant, more than 450 in Wales. Since 2003, 750 people in Wales have received a transplant, but 150 have died waiting. Just 27 per cent of people in Wales have joined the Organ Donor Register.

For more information or to join the Organ Donor Register visit www.donatewales.org or call 0845 60 60 400.

Tuesday 24 June 2008

Glamorgan helps catch vital organ donors - WalesOnline













Glamorgan helps catch vital organ donors
Jun 23 2008 by Madeleine Brindley, Western Mail

GLAMORGAN Cricket Club has adopted the new Welsh organ donation campaign as its official charity partner for the season.

The Dragons, who began their Twenty20 campaign against Warwickshire earlier this month, will display the Donate Wales – Tell a Loved One logo at the Swalec Stadium in Cardiff.

The club will also urge its supporters to think about registering as an organ donor and talk to their family about their wishes.

Cricket manager Matthew Maynard said: “As a community-led club Glamorgan Cricket understands the importance of such a life-saving campaign.

“We urge all our supporters to discuss their organ donation wishes with their families and friends and join the Organ Donor Register.”

Roy J Thomas, chairman of the Kidney Wales Foundation and the Donate Wales campaign, said: “Glamorgan Cricket Club is one of the best supported sides in Wales and their support of the Tell a Loved One campaign is invaluable in raising awareness."

Thursday 19 June 2008

ON THE LOOK OUT FOR LEAFLETS TO SIGN UP IN WALES

The Facebook Donate Wales Group is being asked to look out for leaflets in HSBC branches in Wales and GP Surgeries, Chemists/Pharmacies and Dentists. All delivered by 20th of June- we cannot check everywhere but want to know that the 120,000 leaflets are out there.

Please report back if you see them. Some seen in HSBC Llantwit Major this morning.Also the Little Chef Builth Wells on the weekend.

Thank you

Noel Davies

Campaign Team
Donate Wales
Tel 02920 343940

http://www.facebook.com/group.php?gid=12229443852

Wednesday 18 June 2008

HSBC support Organ Donation in Wales. - WalesOnline

HSBC support Organ Donation in Wales. - WalesOnline

HSBC support Organ Donation in Wales.
Jun 19 2008 by Rachel Moses, Neath Guardian

NEATH branch of HSBC wants its customers to get behind an organ donation campaign to help save more lives.

The bank is supporting Donate Wales – Tell a Loved One campaign, which was launched by the Kidney Wales Foundation.

It aims to encourage more people to express their donation wishes and join the Organ Donor Register.

More than 470 people in Wales are currently listed for a transplant, with the majority needing a new kidney.

Alan Jarman, HSBC’s chief executive in Wales said: “The Donate Wales – Tell a Loved

“We hope that by encouraging our customers and staff to tell their loved ones about their donation wishes, more lives can be saved.”

Sunday 15 June 2008

Daughters pray for new heart for dad - icWales

Daughters pray for new heart for dad - icWales click for full story


Daughters pray for new heart for dad
Jun 15 2008 by James McCarthy, Wales On Sunday


DESPERATELY-ILL Stewart Rankin’s brave teenage daughters are praying for the phone call that could save his life this Father’s Day.

Stewart, 58, has been waiting for a new heart for more than two years and knows he could be reaching the end of his life.

The Glasgow-born hypnotherapist, who used to run a shop in Llanedeyrn, Cardiff, was born with his heart the wrong way round and is now in dire need of a transplant.

He joined the list on Monday, June 5, 2006 – 741 long days ago.

And Molly and Willow just want London’s Harefield Hospital, which has been looking after their favourite man, to call today to give him the best Father’s Day gift he – and they – could wish for.

They just want their dad healthy but know that might never happen.

For the past 18 months they’ve been encouraging people to become donors. They’re backing the Kidney Wales Foundation’s “Donate Wales – Tell a Loved One” campaign to get people talking about the subject.

Saturday 14 June 2008

Organ Donation and Ethnicity Study

Imperial College London - Organ Donation and Ethnicity Study (ODES)

Despite several successful Campaigns like ours in Donate Wales there remains a severe shortage of organs for transplant in the UK and particular for Indo-Asian and Afro-Caribbean ethnic groups.

Unfortunately, people from Indo-Asian and Afro-Caribbean ethnic backgrounds are more likely to need an organ transplant because of higher rates of high blood pressure and diabetes than the general population which can lead to kidney failure.

Furthermore, since some organs are often matched by tissue type and blood group, an organ from the same ethnic group is more likely to be successful. The Organ Donation and Ethnicity Study (ODES) aims to understand better the relationship between ethnic beliefs and organ donation by talking to people from a White British/Irish, Indo-Asian and Afro-Caribbean ethnic background with a positive or ambivalent opinion of organ donation and transplantation. From this sample the Faculty aims to understand how people are managing to integrate the idea of organ donation and transplantation into their lives including their ethnic and spiritual beliefs.

Imperial College London - Faculty of Medicine .The Faculty is one of Europe's largest medical institutions - in terms of its staff and student population and its research income.

Excellent catchphrase to mobilise project Donate Wales

The Greatest gift LETTER TO WESTERN MAIL 13 of June 2008

SIR – The “Tell a Loved One” story (June 2) regarding organ donation for transplants is an excellent catchphrase to mobilise project Donate Wales.

Eighty per cent of the people of Wales wish to donate their organs after death but only some 25% have registered or told their next to kin of their wishes, resulting in patients dying in their hundreds while still on very expensive soul-destroying dialysis or other procedures.

Donated organs are worth more than cremated organs as they can prevent children becoming orphans and parents losing their beloved children.

They can also get the bread- winner of a family back into work rather than existing on benefits.

One donor can save up to seven lives if only people, young and old, would dial the magic telephone number 0845 60 60 400 to ensure they are entered on the NHS organ donor register.

I’m grateful to my kidney donor for giving me the gift of life five years ago, after I had suffered five years on very expensive and miserable dialysis.

Organ transplantations are among one of the most cost effective procedures the NHS can make, thus releasing millions of pounds per annum, to the lasting benefit of all hospitals, social services, patients and their families. If only everyone, young and old, would Tell a Loved One their wishes and dial that magic number 0845 60 60 400 now.

What greater gift can man give to man than the gift of life?

It makes one’s life worth while.

MICHAEL J REES
A member of the WKPA, Llandeilo, Carms

Bethan Jenkins AM supports organ donation campaign - icWales

AM supports organ donation campaign - icWales

AM supports organ donation campaign
Jun 5 2008 by Emma Pengelly, Neath Guardian

A PLAID Cymru AM is urging locals to help the 400 people across Wales who are desperately waiting for an organ transplant.

South West Wales AM Bethan Jenkins is supporting the Donate Wales Tell a Loved One campaign, which highlights the importance of people telling friends and family of their wish to be an organ donor.

Due to a shortage of organs, some people on the waiting list for a transplant have to wait years before getting one, and others die.

Speaking from the National Assembly, the AM said: “One of the biggest obstacles to more lives being saved is that four out of 10 families refuse for their loved ones organs to be donated – often simply because they didn’t know what they would have wanted. In the last five years more than 750 lives in Wales have been transformed by a transplant and the generosity of a donor.

“Sadly in that same time 150 people have died, many just children, and without more donors more lives will be lost.”

There is no age limit to joining the register or restrictions because of a person’s sexuality.

Give Wales Your Hearty Support - Bates

Give Wales Your Hearty Support - Bates
3.04.38pm BST (GMT +0100) Fri 13th Jun 2008

As the Kidney Wales Foundation continues their 'Donate Wales' campaign, Welsh Lib Dem Mick Bates AM expresses his strong support for the campaign which is aimed to tackle the shortage of organ donors in Wales. Mick recently underwent a hip operation and found himself lucky that his operation didn't require a transplant. However, the Montgomeryshire AM remains concerned with the fate of more than 450 people across Wales who are currently waiting in hope.

Sadly, within the last 5 years 150 people died waiting while more than 750 received a transplant that changed their lives. The critical shortage of organs is increasing while 73% of Wales is still to register for the donation.

Mick Bates: "It is sad that so many people die waiting for a transplant. When asked, 90% of people support organ donation. In my view presumed consent for organ donation would be a life-saving response to the needs of many Welsh people who are currently awaiting a transplant.

"This is not an easy topic for conversation, but we must promote knowledge about organ donation in Wales. Many people are not aware that there is no minimum and maximum age limit for registering as a donor. Having a medical condition does not necessarily prevent a person from becoming an organ or tissue donor either."

In Powys alone at the end of February this year 12 people were waiting for a kidney transplant, while 48 were receiving dialysis, according to the Health Commission Wales.

Mick said: "Registering for organ donation can have a real life-saving impact and help people from your area. We must encourage more people to register for organ donation which can give others a chance to live."

Wednesday 11 June 2008

Bank’s organ donor cause - Daily Post North Wales

Bank’s organ donor cause - Daily Post North Wales

click for full story

Bank’s organ donor cause
Jun 11 2008 by Carl Butler, Daily Post


HSBC Wrexham is banking on its Welsh customers getting behind a pioneering organ donation campaign to help save more lives.

The bank is supporting the Donate Wales – Tell a Loved One campaign, which was recently launched by the Kidney Wales Foundation and aims to encourage more people to talk about their organ donation wishes with their families and friends and join the Organ Donor Register.

Prime Minister's Questions Today on last weeks of Adrian Sudbury

Kali Mountford (Colne Valley) (Lab): I am sure that my right hon. Friend will have been impressed by the incredible courage of Adrian Sudbury, who is using the last weeks of his life to campaign for more bone marrow donors to come forward. I have been impressed by the response so far of the Secretaries of State for Children, Schools and Families and for Health, but what more can my right hon. Friend do to help my friend Adrian to achieve his legacy and help 7,000 people to live?

The Prime Minister: I, too, have met and seen the courage of Mr. Sudbury who, as my hon. Friend says, is using the last few weeks of his life to try to make people better aware of the dangers that result when bone marrow donation is not available. The promotion of the donation of blood, bone marrow and organ is a priority for the Department of Health. We are looking at what we can do. The key issue is whether we can encourage people to be donors. I believe that in the next few months we will be able to put proposals that will assist, if not Mr. Sudbury, many other people who suffer as a result of these illnesses.

http://news.bbc.co.uk/1/hi/england/7438865.stm for video of Adrian

Sunday 8 June 2008

Cricket Stars Line Up For Donor Campaign (from South Wales Argus)

Cricket Stars Line Up For Donor Campaign (from South Wales Argus)

Cricket manager, Matthew Maynard said: "As a community-led club Glamorgan Cricket understands the importance of such a lifesaving campaign. We urge all our supporteres to discuss their organ donation wishes with their families and friends and join the organ donor register."

More information about the campaign will be available at games throughout the season.

11:29am today

Glamorgan Cricket to knock organ donor shortage for six

Glamorgan Cricket to knock organ donor shortage for six

Glamorgan Cricket is aiming to knock the shortage of organ donors for six after announcing the Donate Wales – Tell a Loved One campaign as their official charity partner for the 2008 season.

The Glamorgan Dragons, who begin their Twenty20 campaign against Warwickshire on Wednesday, June 11th, will display the "Tell a Loved One" logo in their home matches at the SWALEC Stadium in Cardiff, as well as in their match day programme and on the club's website.

Tuesday 3 June 2008

Stars back organ donation campaign - icWales

Stars back organ donation campaign - icWales

Stars back organ donation campaign
Jun 3 2008 by Aled Blake, Western Mail

DESIGN and advertising agency Peter Gill & Associates has been appointed to deliver the Donate Wales Tell a Loved One campaign.

It is the first organ donation campaign specific to Wales and includes a series of bilingual TV advertisements featuring high-profile individuals such as James Hook, Connie Fisher and Colin Jackson. It aims to encourage individuals to join the Organ Donor Register and inform their loved ones of their intentions.

Jason Gill, Cardiff-based Peter Gill & Associates account director, said: One of the biggest obstacles to more lives being saved is that four out of 10 families refuse for their loved ones organs to be donated often because they didnt know what they would have wanted.

Our aim was to make a personal connection with people, and, in striking a chord, help them to understand how important it is for loved ones to be part of an individuals decision to donate an organ.

Roy Thomas, executive chairman of the Kidney Wales Foundation, which is leading the campaign, said: The team at Peter Gill & Associates has joined with us to create a high calibre campaign that really reaches out to people, I am certain it will resonate with people throughout Wales, encouraging them to join the Organ Donor Register, and communicate their wishes to those closest to them.

This was the first time a TV advert has ever been used in this way to promote an organ donation campaign, so Peter Gill & Associates has truly carried out some groundbreaking work.

The agency has designed the website, where Colin Jackson makes an appeal aimed at addressing the fact there is a shortage of donors from Black and Asian communities.

Monday 2 June 2008

‘It would have been selfish if I hadn’t changed someone’s life’ - icWales

‘It would have been selfish if I hadn’t changed someone’s life’ - icWales
full interview click here

‘It would have been selfish if I hadn’t changed someone’s life’Jun 2 2008 by Madeleine Brindley, Western Mail

Aled Haydn Jones is best known as the daytime producer of the Radio One Chris Moyles Show. He is also one of the Welsh celebrities spearheading the Donate Wales – Tell A Loved One campaign. He spoke to Health Editor Madeleine Brindley about his involvement in the campaign

Q How long have you been on the organ donor register?

A: I’ve actually carried an organ donor card on and off for as long as I can remember. I’ve always felt quite strongly that if I’ve been able to help – even after my death – it’s something I’ve wanted to do.

See more of the interview by clicking above.

Organ campaign leads UK - icWales

Organ campaign leads UK - icWales Click for full story

Organ campaign leads UK

Jun 2 2008 by Jonathan Morgan AM

Charities working together to solve this problem will have a major impact says Jonathan Morgan

THE recent launch of the Donate Wales – Tell a Loved One campaign will set an example in Wales which the rest of the UK must follow.

The initiative was grasped in the Senedd building when politicians, charities, health professionals and journalists gathered around a large television for the first public screening of a new television advert.